Todd Harris, PhD

Facilitating scientific discovery at the intersection of genetics, genomics, bioinformatics, big data, cloud computing, and open science.

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23andme’s new Migraine Survey

October 16, 2009 By Todd Harris Leave a Comment

23andme has unleashed a new survey that aims to assess the genetic basis of migraine.

What’s more, 23andme hope to raise public consciousness — and hopefully research funding — of migraine. On The Spittoon, MikeM writes:

Two prominent migraine researchers have suggested that the blame for the slow progress in understanding migraine lies with a systemic lack of public funding for migraine research. They argue that the relatively recent, and incomplete, acceptance of migraine by the medical and research communities as a genuine medical problem, as opposed to mere melodrama, has led migraine’s funding to lag well behind that for diseases of similar impact. For example, they estimate that while $13.80 is spent for each sufferer of asthma, just 36 cents of federal research funds are spent per migraine sufferer.

The genetics of migraine are also only partially understood. That’s where our new survey comes in. Our community-based research program 23andWe seeks to empower the public to engage in genetic research from the ground up. We know our efforts cannot substitute for proper federal support of migraine research, but evidence of great public interest, plus a new finding or two, would add to our understanding of the disease and potentially send a message to Washington.

I have experienced the “migraine as melodrama bias” myself. See, I’ve suffered from migraines since I was in sixth grade. I still remember describing the visual symptoms and ensuing headache phenomena at a time when migraine was even less poorly understood than it is today. My list of symptoms is now easily recognized migraine: aura, sensitivity to light and sound, nausea, duration.

And although there are phenomenal treatments now available, I don’t take a thing. I’ve come to see migraines as a way of flushing out the pipes, a neurological reset that helps me think clearer and with greater creativity.

You don’t need to be a 23andme subscriber to take the survey.

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Filed Under: personal genomics Tagged With: 23andme, funding, migraine, survey

Welcome!
My name is Todd Harris. A geneticist by training, I now work at the intersection of biology and computer science developing tools and systems to organize, visualize, and query large-scale genomic data across a variety of organisms.

I'm driven by the desire to accelerate the pace of scientific discovery and to improve the transparency and reproducibility of the scientific process.

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